Further research using the proposed conceptual model and the hfcql scale is warranted. Telephone assessment and skillbuilding intervention for stroke caregivers taskii the safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Caregiver burden, productivity loss, and indirect costs. Unidimensionality was supported by factor analysis in both samples. These persons are collectively referred to as family members. Revised scale for caregiving selfefficacy steffen et al. All items except items 1, 5, 10, 17, and 20 were reverse coded in such a way that 1 implies the low to.
Burden scale for family caregivers in 20 european languages with this scale, valid assessment of subjective burden among family caregivers is possible all over europe using the same questionnaire. The act of the caregiver precedent is described by caregiving antecedent. Pdf validation of the revised bakas caregiving outcomes scale in. Nearly always please circle the response the best describes how you feel. Further functional data were acquired using the stroke impact scale sis16 11 and qol using the stroke specific ssqol scale 12 for the patient and the short form sf12v2 for the wifecaregivers, depression using the beck depression inventory bdiii, 14 caregiver burden using the bakas caregiver outcome scale bcos, 15 and marital. Family caregivers of stroke survivors experience more depression, emotional problems, social inactivity, and general illhealth than. The kingston caregiver stress scale is a scale designed to allow a family caregiver to express the level of stress that he or she is currently feeling around the duties of dementia care. Bakas caregiving outcome scale shows evidence of satisfactory reliability. Comparison of stress experienced by family members of. Validation of the revised bakas caregiving outcomes scale. Bakas caregiving outcomes scale west indian medical journal. Search for abbreviation meaning, word to abbreviate, or lists of abbreviations.
Family caregiver resilience and the important role of. Issues such as quality of life are now widely used in clinical trials and in patient management for assessing morbidity and the impact of. Crosscultural adaptation of the caregiver reaction assessment for use in brazil with informal caregivers of the elderly examined by a committee of judges, for its semantic, idiomatic, experimental and conceptual equivalencies, in order to establish a preversion brazilian cra. The conceptual model for the study figure 1 was derived from lazaruss. The present study examined the reliability and validity of the bsfcs. The most popular abbreviation for bakas caregiving outcomes scale is. Subjective burden is a central variable describing the situation encountered by family caregivers. The impact of an educational intervention in caregiving. Development and psychometric testing of the bakas caregiving outcomes scale.
The new hfcql scale showed potential as a quality outcome measure in hf caregivers, and might be used to screen hf caregivers for poor quality of life. To psychometrically test the revised 15item bakas caregiving outcomes scale bcos measuring life changes specifically resulting from providing care. Caregiver burden, productivity loss, and indirect costs associated with caring for patients with poststroke spasticity vaidyanathan ganapathy,1 glenn d graham,2 marco d dibonaventura,3 patrick j gillard,1 amir goren,3 richard d zorowitz4 1allergan, irvine, ca, usa. The patient health questionnaire depression scale phq9 measuring caregiver. An illustration of caregiver outcome based learning. Pdf validation of the revised bakas caregiving outcomes. Subscribing to this logic, caregiver and caregiving equate to the same, when in essence, the terms may represent two entirely different concepts. The scale was originally developed to measure life changes in family caregivers of stroke survivors, but has also been used in family caregivers of those with heart failure and a variety of other.
Development of a brief assessment scale for caregivers of the medically ill. Request pdf psychometric testing of the revised 15item bakas caregiving outcomes scale family caregivers of stroke survivors. Do you think your own health has suffered because you have been taking care of your relative. Stroke caregiver outcomes from the telephone assessment.
Caregiver burden was measured with the revised greek bakas caregiving outcomes scale, and psychological distress was screened with greek hospital anxiety and depression scales. Listing a study does not mean it has been evaluated by the u. One result of the consensus conference was the identification of fundamental principles. For this part, we are interested in how confident you are that you can keep up your own activities and also respond to caregiving situations. Following their consent, a questionnaire was sent to their informal carer. Caregiver quality of life indexcancer cqolc scale 35item rating scale measuring physical, emotional, family, and social functioning burden caregiver reaction assessment cra 24item rating scale measuring burden in selfesteem, lack of family support, finances, schedule, and health caregiver strain index csi. The stroke survivors completed the barthel index and the geriatric depression scale. The responsibilities and challenges of caring for a loved one can place significant stress on the family caregiver. The original 10item bcos was improved by adding five items addressing. Further reproduction prohibited without permission. Functional and psychosocial outcomes 1 year after mild stroke.
Time and difficulty of tasks provided by family caregivers. Interview and informal caregiver burden assessment questionnaire. Functional independence measure, bakas caregiving outcomes scale, reintegration to normal. The results in this study demonstrated that the zarit burden interview is a valid and reliable instrument for measuring the burden of caregivers of pwd in singapore. Selected caregiver assessment measures family caregiver alliance. Family caregivers of stroke survivors experience a variety of negative social, emotional, and healthrelated outcomes as a result of providing care.
A resource inventory for practitioners v in 2005, family caregiver alliance convened the national consensus development conference with 54 experts in caregiving, health and longterm care, and public policy. Assessing the impact of caregiver outcomes on function and. Caregiver burden scale questions please, place a tick in the appropriate box. The z a r i t b u r d e n i n t e r v i e w scalelibrary. Home care nurses rate a familys caregiving outcomes on three scales the frail elder outcome scale, the caregiver outcome scale, and the family outcome scale using a scoring range from 1 least positive outcome to 3 most positive outcome. This subjective burden is one of the most important predictors for negative outcomes of the care situation for the caregivers themselves as well as for the one who requires care. Each item is rated on a 4point likert scale, ranging from 1 strongly disagree to 4 strongly agree. Validity and reliability of the zarit burden interview in. Join a caregiver support group eat a wellbalanced diet see your physician for a wellbeing checkup treat yourself to something fun laugh. Using hierarchical multiple regression, 63% of the variance of the 12item bcos in sample no. Caregiver burden considerably affects the lives of families providing care to people with advanced cancer. In fact, this stress can build up to actually cause caregiver distressa situation where the caregiver may become more susceptible to other health risks such as high blood pressure, diabetes, and increased risk of stroke. These images are a random sampling from a bing search on the term caregiver burden scale.
Psychometric testing of the revised 15item bakas caregiving. Caregiver burden is the stress which is perceived by caregivers due to the home care situation. This manuscript examines caregiver burden among a small sample of primary caregivers of stroke patients in jamaica. Therefore, a distinction between the use of the terms, caregiving and caregiver, in the extant literature is warranted. Family caregivers, also referred to as informal caregivers, provide a level of care at home often equivalent to that of professional nurses, such as monitoring their family members acute or chronic conditions, recognizing early signs of impending problems such as. Bakas and burgener 2002 found that difficulty with carrying out caregiving tasks was a strong predictor of emotional distress and other negative health outcomes in the stroke caregiver. Caregiver life changes were measured by the 15item bakas caregiving outcomes scale addressing changes in social functioning, subjective wellbeing, and physical health as a result of providing. Telephone assessment and skillbuilding intervention for. Talk with your physician about ways that you can enhance balance in your roles. The bakas caregiving outcomes scale and a demographic sheet were administered to the caregivers. Background the burden experienced by family caregivers is the most important caregiverrelated. The bakas caregiving outcomes scale bcos is an instrument designed to measure life changes in family caregivers of persons with chronic illness. After each question, circle how often you feel that way. Click on the image or right click to open the source website in a.
Carer impact the impact of a disease on a patient is an increasingly important outcome measure in medicine and healthcare. This project is supported by the health resources and services administration hrsa of the u. Tamilyn bakas, dns, rn, faha, faanassociate professor. Outcome variables the primary outcome variables of the study were the proportion of family members who experienced each of the 15 potentially stressful situations and the proportion. Has your social life, eg with family and friends, been lessened.
The 15item bakas caregiving outcomes scale bcos measures caregiver life. Line graphs for functional independence measures from. Stroke caregiver outcomes from the telephone assessment core. Comprehensive data from the ida project were the basis of the. The 10item short version of the burden scale for family caregivers bsfcshortbsfcs was developed to provide an economical measure of this variable. Caregiver fatigue is a fast track to caregiver burnout. The impact of an educational intervention in caregiving outcomes in jordanian caregivers of patients receiving hemodialysis. Hiring someone to come in at night will cost a little money, but it will be significantly less than moving your loved one into a longterm care facility. The scale is designed for community living lay caregivers, not institutional care staff. Short version of the burden scale for family caregivers in 20 european languages with this scale, valid assessment of subjective burden among family caregivers is possible all over europe using the same questionnaire. Validation of bakas caregiving outcome scale for brazilian.
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